GO EJ - Book giveaway for the Choroideremia Research Foundation

Imagine seeing life through a straw until your peripheral vision erodes and soon that small tunnel of vision will close into blackness.

That’s what people effected by Choroideremia (CHM) face. Some, have never seen stars, driven a car and their love for reading is fading with their sight.

EJ Scott is one who is effected by CHM. He has already lost 80% of his sight and is fighting to keep the remaining 20%. EJ has set out on a mission to raise awareness and funding for the Choroideremia Research Foundation by running 12 full, 26.2 mile, marathons this year. He’s not only running for himself, but also for everyone that carries the disease which includes his brother and seven year old nephew. His goal is raise $144,000 this year and he’s already raised $20,000.



EJ’s first marathon starts in a week in Arizona.

Why is this so urgent, because time is running out for some and it means the difference between the darkness and the light. A cure is just out of their reach and all they need is the funding.

Here is where the fun starts! To help support EJ raise funds and awareness, a team of authors have decided to give away not one, but several of their own books, bookmarks, and other types of swag. I am lucky to count myself as one of his top supporters! Keep watch as more items are added and PLEASE see rules below.

How to enter. Please pay close attention to the rules there are 2 ways to win! You can do 1 or both:

 

Entry #1

#1: you must “like or follow” one of EJ’s social networks.
Facebook:  12 marathons in 12 states in2012 for the Choroideremia Research Foundation
Blog: www.ejcurechm.blogspot.com
Twitter: @12marathons2012

#2: Take a picture, blindfolded, with the words “GO EJ,” on the front. It can be a picture of you, your spouse, kid, pet, neighbor...  To make it easy, if you have to Photoshop the words, you can.

#3: You must post your picture:
FB: Facebook and tag (@Tina Carreiro Facebook)
Tweet: @12marathons2012 and @Tincarr


This is for tracking! If I don't see it, I can't give you credit for it. :) 

Entry #2

#1 - DONATE - any amount is appreciated! When you donate, please write, BOOK, in the note section. This will let us know that you want to be entered into the book giveaway.

You can donate here: www.ejcurechm.blogspot.com or www.curechm.org

First giveaway ends after the first race!

Participating Authors

*Tina Carreiro – (Authographed copy, swag, e-copy Powerof Moon ) Tina’s connections:  Website Twitter Goodreads Blog   Facebook

*Dawn Jayne – (Autographed copy of Uprising, e-copy and Autograph copy of 13Tales of Paranormal Anthology) Dawn’s connections: Facebook Web

*Bertena Varney - ( Autograph copy and e-copy of  Lure of the Vampire) Bertena's connections: Web Vampire Examiner Facebook

*Danielle Lee Zwissler - (Autographed copy and e-copy of Her Last Chance) Danielle's connections: Twitter  Facebook Website Blog

*P.A. Lupton - (Autographed copy and e-copy of Bound for Blood ) P.A.'s connections: Web Goodreads Twitter

*Lee Taylor - (Autographed copy and e-copy of Bound) Lee's connection's Facebook Page  Goodreads  Twitter

 



*Theresa Oliver - Cambria (SWAG! Autographed copy and e-copy of Cambria (when released)) Facebook website

*Shannon Dermott - (Beg for Mercy - Autographed copy and e-copy) Shannon's connections: Website Twitter Goodreads  Facebook

*T.C. Lee – (Assume the Position (e-copy) T.C. Lee’s connections: Facebook Goodreads

*Firefly & Wisp Publishing - (Paperback and ebook copies of their books and tons of swag) Blog Web Facebook

**Note: Some of the books contain adult content. You must be 18+ to receive any of the martial containing adult material.***

 If you're an author or have something you'd like to donate, please contact me at:

tincarr13 (at) gmail (dot)com

The CRF will provide receipts for your donations.

What is Choroideremia?

Choroideremia (CHM) is a rare inherited disorder that causes progressive loss of vision due to degeneration of the choroid and retina which is caused by a lack of RAB Escort Protein-1 (REP-1). Choroideremia occurs almost exclusively in males. The first symptom, most commonly noticed in childhood, is night blindness. As the disease progresses, there is loss of vision, frequently starting as an irregular ring that gradually expands both in toward central vision and out toward the extreme periphery. Loss of acuity, depth perception, color perception and an increase in the severity of night blindness may also occur during this progression. Progression of the disease continues throughout the individual’s life. Both the rate of change and the degree of visual loss are variable among those affected, even within the same family.

The actual vision loss is caused by degeneration of several layers of cells essential to sight. These layers, which line the inside of the back of the eye, are called the choroid, the retinal pigment epithelium (RPE) and the retina. The choroid is a network of blood vessels located between the retina and the sclera, the “white of the eye.” Choroidal vessels provide oxygen and nutrients to both the RPE and the retina’s photoreceptor cells. The RPE, directly beneath the retina, supports the function of photoreceptor cells. Photoreceptors convert light into the electrical impulses that transfer messages to the brain where “seeing” actually occurs. In the early stages of Choroideremia, the choroid and the retinal pigment epithelium initially deteriorate. Eventually, photoreceptor cells also degenerate, and as a result, vision is lost.

The Choroideremia Research Foundation, Inc. is dedicated to helping researchers find that cure or treatment. By donating to the Foundation, or by becoming an active member, you will help us accomplish our goal of restoring sight to CHMers worldwide!